Due to publishing envy, I'm switching my blog to Wordpress. I feel like such a Google traitor, even though I use Google-everything-else. Where's the sense in it? They don't pay me. We're not related. Some adoring part of me just really wanted the Google-owned Blogger to be the best. Alas it's not...at least yet. I saw Brian assemble and manage his parents' website [http://www.americangroundskeeper.com/] with his elbow, while applying an impossible pair of socks to our spring-legged toddler, and the envy arose within. Meanwhile, my typing fingers have become bound by the tangles of hair I've yanked out trying to get my blog as I like it.
That being said, all future posts will be found at: http://www.sahmhill.com/ . We've moved most or all of my blogger posts over to the new site. It is still under development, but should be suitable for visitation. So, friends, now you will find your readings satisfying and resplendent, knowing I've suffered a little less.
Tuesday, January 25, 2011
Saturday, January 22, 2011
Three, Two, One, Vinblastine
Yesterday (Friday), Elijah *finally* had his last planned dose of chemo. In three weeks, he will have a full-body PET scan, and if it is at least as good-looking as his previous scan, then he will go to an observation schedule of check-ups every month, then every three months, then 6 months, then annually. He has about an 80% chance of staying well, says Dr. B. He would be likely to relapse sooner than later, so they will probably leave the port in for a few months. Dr. B. said after three years, his chance of relapse dramatically decreases.
The interesting thing Dr. B. said about the PET scan is that it does not have to be completely clear - just mostly clear. That takes a load off anticipating the scan. Now, after all this, am I excited? Meh. I'm quite glad the little guy won't have those nasty drugs in his body, but this hasn't really felt like a "weight-lifting" moment. Brian reminded me that it's a good thing. Our big-sigh-of-relief moments had been coming after re-inflated lungs and such. His progress has been so protracted that a last dose of medicine is pleasantly anti-climactic. Plus, we are probably holding our breath a little bit for the scans. Plus we have been in "cope" mode for so long that our leaps for joy are probably more like tentative skips. Plus we generally feel great about his condition and don't expect any surprises. Plus, the only thing that will change in our routine is the absence of medicine; we will still take monthly jaunts to visit our clinic friends.
I have a nearly-irresistible urge to skip his last week of Prednisone. I am to give him 9 more doses over the next 4.5 days, to accompany his chemotherapy. That stuff makes him absolutely bonkers. Then, there is the Zantac to protect his tummy and the Hydroxyzine to help *us* sleep, because none of us can rest with his steroid-induced Brownian motion. So, that's the hard part of 10 milliliters of repugnant liquid to get a twitchy, cantankerous toddler to swallow. If I'm sneaky, I can get the first gulp to take him by surprise. He fights the second squirt, pocketing some in his cheek long enough to convince me he's swallowed, then blow-holes it before erupting in a spirited cackle. On the third attempt, his face is whipping side-to-side so quickly, I can scarcely locate his mouth. I visualize my next move, waiting until he pauses, and I launch my medicine missile. Typically, I then shuffle to the sink to wash my empty syringe, hoping he'll absorb enough from the puddle in his ear to do the trick.
The interesting thing Dr. B. said about the PET scan is that it does not have to be completely clear - just mostly clear. That takes a load off anticipating the scan. Now, after all this, am I excited? Meh. I'm quite glad the little guy won't have those nasty drugs in his body, but this hasn't really felt like a "weight-lifting" moment. Brian reminded me that it's a good thing. Our big-sigh-of-relief moments had been coming after re-inflated lungs and such. His progress has been so protracted that a last dose of medicine is pleasantly anti-climactic. Plus, we are probably holding our breath a little bit for the scans. Plus we have been in "cope" mode for so long that our leaps for joy are probably more like tentative skips. Plus we generally feel great about his condition and don't expect any surprises. Plus, the only thing that will change in our routine is the absence of medicine; we will still take monthly jaunts to visit our clinic friends.
I have a nearly-irresistible urge to skip his last week of Prednisone. I am to give him 9 more doses over the next 4.5 days, to accompany his chemotherapy. That stuff makes him absolutely bonkers. Then, there is the Zantac to protect his tummy and the Hydroxyzine to help *us* sleep, because none of us can rest with his steroid-induced Brownian motion. So, that's the hard part of 10 milliliters of repugnant liquid to get a twitchy, cantankerous toddler to swallow. If I'm sneaky, I can get the first gulp to take him by surprise. He fights the second squirt, pocketing some in his cheek long enough to convince me he's swallowed, then blow-holes it before erupting in a spirited cackle. On the third attempt, his face is whipping side-to-side so quickly, I can scarcely locate his mouth. I visualize my next move, waiting until he pauses, and I launch my medicine missile. Typically, I then shuffle to the sink to wash my empty syringe, hoping he'll absorb enough from the puddle in his ear to do the trick.
Sunday, January 16, 2011
The Fun "1"
Our baby boy has graduated into toddlerhood. Elijah had his first birthday last Friday. Brian went to work for the first time that week, since we had been iced in. Most places were closed. People were ice skating and skiing on the streets of downtown Atlanta. The Tuesday before was supposed to have been Elijah's last chemo treatment, but the weather chose differently. It would have been an easy-to-remember 1/11/11 at 11:00 appointment. Oh well. Next Friday it is!
We "celebrated" with a birthday dinner at a diner down the street, that was short-staffed and out of dessert. We then looped around town, snubbing "cool treats" for something warmer. We ended up at Dunkin Donuts, also nearly out of sweets, where we impaled a powdered munchkin with a stir stick and sang "Happy Birthday" to Elijah. We tossed Elijah a large $3.99 Blue ball, because (apparently) him enjoying his present is more important than me feeling good about it. (:grin: I love you, Brian!)
While we're on the subject, my brain is still whirring - disoriented and perplexed. We (i.e. Brian) went birthday shopping at Target and spent $8, and half of that was the birthday present. H-how did he get out of Target for $8? Th-there were $4 boys' shirts..a-and half-price Geotrax, and...sales! Glorious sales! I sit here trying to make sense of it all, wondering what I will say to my Am-Ex, still quivering in my pocket.
Well, Elijah likes the ball. Over Christmas vacation, he transitioned from mostly crawling to mostly walking, so chasing a belly-high ball is right up his alley. Besides, he had a proper party in Florida.
I'm still amazed by the things he's already figured out. The other day, I tried to zip through a shower, while Elijah banged at the shower door, sobbing on his waffle. I quickly dried off, calmed him and handed him back his soggy waffle. He mouthed it, decided he didn't care for it anymore, and waddled over to the trash and dumped the waffle. That would be handy if I didn't keep finding perfectly good sippy cups and books in the trash too.
Today, at breakfast, Brian began to say the blessing and Elijah babbled something and put his hands together in "prayer." I've also seen him signing "change," "up," "open," "book," "more," "eat," and playing along with "pat-a-cake." As far as actual words go, he says our names fairly clearly, but most everything else is a repetition of sounds and cadence. He's pretty adept at sound effects. He even does an unfortunately good representation of a scolding expression and voice, before giggling at himself. He has a great sense of humor.
He knows all about doors, socks, shirts and cars and concentrates quite hard on making them do their respective "things." He entertains himself "solving" boxes with lids and shape-sorting toys. His frustratingly solid object permanence abilities make him very hard to distract. This is all typical, but it never ceases to amaze me how quickly a baby can figure out his world.
He's an agile climber too. He zips up steps and onto riding toys, which he frequently tries to use like a scooter. When he doesn't want to be held, he's very hard to restrain. He's one determined boy.
I feel so blessed watching him grow, and seeing how unaffected he is, considering all he's been through. I remember all the prayers, meals, visits, donations, calls, cards and more from hundreds of friends, acquaintances and even strangers, that gave us the strength and comfort to endure Elijah's trials. God is so good and has held our sweet boy tightly in His hands, and has brought so many great people into our lives. I can't wait to see what He has in store for our little one as he grows!
We "celebrated" with a birthday dinner at a diner down the street, that was short-staffed and out of dessert. We then looped around town, snubbing "cool treats" for something warmer. We ended up at Dunkin Donuts, also nearly out of sweets, where we impaled a powdered munchkin with a stir stick and sang "Happy Birthday" to Elijah. We tossed Elijah a large $3.99 Blue ball, because (apparently) him enjoying his present is more important than me feeling good about it. (:grin: I love you, Brian!)
While we're on the subject, my brain is still whirring - disoriented and perplexed. We (i.e. Brian) went birthday shopping at Target and spent $8, and half of that was the birthday present. H-how did he get out of Target for $8? Th-there were $4 boys' shirts..a-and half-price Geotrax, and...sales! Glorious sales! I sit here trying to make sense of it all, wondering what I will say to my Am-Ex, still quivering in my pocket.
Well, Elijah likes the ball. Over Christmas vacation, he transitioned from mostly crawling to mostly walking, so chasing a belly-high ball is right up his alley. Besides, he had a proper party in Florida.
I'm still amazed by the things he's already figured out. The other day, I tried to zip through a shower, while Elijah banged at the shower door, sobbing on his waffle. I quickly dried off, calmed him and handed him back his soggy waffle. He mouthed it, decided he didn't care for it anymore, and waddled over to the trash and dumped the waffle. That would be handy if I didn't keep finding perfectly good sippy cups and books in the trash too.
Today, at breakfast, Brian began to say the blessing and Elijah babbled something and put his hands together in "prayer." I've also seen him signing "change," "up," "open," "book," "more," "eat," and playing along with "pat-a-cake." As far as actual words go, he says our names fairly clearly, but most everything else is a repetition of sounds and cadence. He's pretty adept at sound effects. He even does an unfortunately good representation of a scolding expression and voice, before giggling at himself. He has a great sense of humor.
He knows all about doors, socks, shirts and cars and concentrates quite hard on making them do their respective "things." He entertains himself "solving" boxes with lids and shape-sorting toys. His frustratingly solid object permanence abilities make him very hard to distract. This is all typical, but it never ceases to amaze me how quickly a baby can figure out his world.
He's an agile climber too. He zips up steps and onto riding toys, which he frequently tries to use like a scooter. When he doesn't want to be held, he's very hard to restrain. He's one determined boy.
I feel so blessed watching him grow, and seeing how unaffected he is, considering all he's been through. I remember all the prayers, meals, visits, donations, calls, cards and more from hundreds of friends, acquaintances and even strangers, that gave us the strength and comfort to endure Elijah's trials. God is so good and has held our sweet boy tightly in His hands, and has brought so many great people into our lives. I can't wait to see what He has in store for our little one as he grows!
A Visual Catch-Up Guide
To help you cope with my usual delinquency, I have created a visual catch-up guide of the recent history of the Cummings family, covering our three Christmases, and into the new year.
On the first third of Christmas, I achieved, on the 15th shutter release, a nearly-focused snapshot of my three miniature men about to open their Georgia-based gifts.
What followed this shot was a verrry leisurely opening, inspecting, assembling and playing of new toys. We took pleasure in the non-carnage of the event. Hours after commencement, gifts sat unopened, as each toy was thoroughly appreciated, leaving our nervous materialism alarms unsprung. P.s. When, and if, I find those evil little loss-prevention gnomes, with their nubby, nimble little fingers meticulously binding toys to hidden crevasses of their packaging, there'd better be some gnome-loss prevention yetis nearby to bind *my* limbs.
Next, we continue to BJs Wholesale Club, where we "wrapped up" some last-minute shopping, and I shrunk Ian back down to pocket-sized.
Everyone, meet Gene Gnome, Dad's birthday Father's Day Christmas present. My free time has made itself somewhat scarce lately.
Finally, the Wednesday before Christmas, Elijah started walking, so in retribution, I packed the car, strapped him (and his brothers) in the van and drove to Florida.
Everyone began feeling properly spoiled. Isaac and Aunt Ashley pressed cheeks.
Uncle Jack grinned from ear to ear.
Elijah and Grammy shielded their eyes from the glorious Christmas inferno. According to Ian, this is appropriate Christmas decoration, in contrast to my "Christmas shrine" - a table top tree with a token handful of ornaments, stuffed into a corner of the living room. I agree.
On the second third of Christmas, Aunt Ashley and Uncle Adam amuse themselves trying to stuff Elijah into his Santa suit. Elijah amuses himself by masterfully resisting.
Oooh! Dada a do! Do doo!
Starting stocking stuffers.
Grandpa Jim is so funny!
Elijah's first wrapping paper party.
On the third third of Christmas, Ian and Grandpa saw some meat.
Elijah narrates the festivities.
Mr. Isaac looking handsome in his Frosty vest.
Ian rings in the New Year.
Statler and Waldorf give their condiments to the chef.
Chef Boyardee does it again! Perfect pancakes, served with a smile!
Aunt Kelly reels in amazement as Captain Isaac, Space Ranger, launches to the moon in his new Fatheronium-powered rocket.
Whew. Christmasing is hard work.
Just a Georgia boy enjoying some old-fashioned Florida orange-pickin'.
We enjoyed the sweater weather, but Florida quickly lost its coolness.
Meanwhile, the Toys exercised a bit of passive-aggressiveness.
We decided to give Elijah an early birthday party, complete with the traditional birthday pumpkin pie.
Returning home from two thirds of Christmas requires super-human packing abilities and a long history of Tetris playing.
We returned home just in time to be iced in for the week.
Brian discovered ice petals sliding off of the bushes.
Elijah enjoyed his first snow day, Tupperware-sledding in the back yard.
After getting somewhat settled at home, the boys went to play with their friend, Luke. They wanted to decorate gingerbread cookies. That lasted about a cookie and a half, leaving mom to do the remaining dozen or so. My impatient grip, paired with a makeshift sandwich-baggie piping bag, resulted in one unsuspecting gingerbread man succumbing to a sweet, red tsunami. In an effort to clean up, most of the gingerbread men ended up with rosy sweaters, crimson jogging suits and bloodshot eyes. That got boring in short order, so I mixed it up a little with the occasional ginger cow and ginger business man.
To bring us up to date, I regret that I have no photo evidence, but I will conclude with today's highlight: Brian applying glue stick to Isaac's lips.
Isaac approached Brian with an opened glue stick, conveniently tinted purple for gluing accuracy, and asked him to put it on his cheek. Brian says, "Don't you mean your lips?" and proceeds to apply it to Isaac's lips. Then, Brian decides to find and inspect the "chap stick" lid and discovers it's glue.I think he missed a fabulous opportunity. In fact, maybe I'll give the "chap stick" trick a crack next time it starts to get a little wild in the house.
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